RDCRN Contact Registry
Join the RDCRN Prader-Willi Contact Registry

The Rare Diseases Clinical Research Network (RDCRN) Prader-Willi Contact Registry is a way for patients with Prader-Willi and their family members to learn about Prader-Willi research studies they may be able to join. Participation is completely voluntary and you may choose to withdraw at any time. There is no cost to join the Contact Registry.


Click “Join” to begin enrolling in the RDCRN Prader-Willi Contact Registry. You will be asked to provide consent and authorize use and disclosure of protected health information during enrollment.

Already joined? Login here

Contact the RDCRN at RDCRNContactRegistry@epi.usf.edu if you have questions about the RDCRN Contact Registry.